Australian, signed, World Cup Cricket Stump

The winning Australian one day side signed the cricket stump after their victory in the 2003 World Cup final in South Africa. Toowoomba Radio Station 4GR auctioned it on the Graham Healy midday show, 21st November 2003 and was sold for $5100.00 to David and June McLeod, of the Crows Nest Post Office and News Agents.

error-file:tidyout.log
The stump was signed by - Ricky Ponting, Glen MgGrath, Matt Hayden, Adam Gilchrist, Darren Lehmann, Brett Lee, Andrew Symonds, Damien Martyn, Nathan Hauritz, Andy Bichel, jimmy Maher, Ian Harvey Michael Bevan.


error-file:tidyout.log

Nu Skin EB Appeal.

A core part of NSE's operating philosophy is to act as a force for good throughout the world. We fulfill this objective through our Force for Good Foundation - a source of funding for, amongst other things, finding cures for life threatening diseases. One such disease is Epidermolysis Bullosa - or EB as it is more commonly known. This is a very distressing skin blistering condition which varies in degree from mild to severe and is often fatal. Click here for more.

International Conference - Switzerland

Carmel from Western Australia and Anna from New Zealand are the Australasian representatives to be attending. The follwing states have worked together to provide support for Carmel and Anna

  • South Australia - Support for flights ( Carmel and carer)
  • Queensland - Support for flights acoomodation
  • New South Wales - Support for accomodation
  • New Zealand - Support for flights



Toombul Ladies Bowls Club - August 2003
Another VERY BIG thank you to the Past Presidents and Present Members of the Toombul ladies Bowls Club for their generous donation. After a brief conversation with the committee, and a light lunch, Debra Queenland was presented with a donation of $360.00. The ladies have been supporting Debra for over tens years and Debra is very lucky to have such a wonderful group of happy, charming and loyal supporters.


Chat online - 19th July 2003

Meeting on the net
The Geographic size of Australia does not lend itself to a close social network and IRC managed to gather most of the key people who are involved in Debra around Australia and create casual meeting of ideas and current issues that the various states and New Zealand are dealing with.

There are so many factors to holding a conference and there are a lot of improvements needed in the hosting of such meetings. An alternative available to us on the soon to come national siteis a forum. The LIVE aspect of IRC and Chat seemed to pose a few problems, using a forum reduce the need for immediate live responses as we do on IRC. It allows for lengthy replies and helps with managing multithreaded conversations.

Note: Using voice digitizing systems requires high network bandwidths, and if possible on a PSTN modem, the systems create even more complexity when wanting to hold conferences across the network. Im not sure what the current software is like, and I'm more than happpy to be a guinea pig for anyone who wants to look into it. I think a forum on the website to store and publish longer ideas and news stories, IRC to socialise and keep up to date with current affairs, and the normal one to one telephone communication and personal meetings to keep everyone in touch. The websites are there for information, news and marketing material and technology is bringing us closer every day.. it's a good thing...:)
Harry
Hosted by www.chattacomb.net
Our friends at http://www.chattacomb.nethave kindly aided our cause by hosting our Debra chatroom. A young growing server, based in Alberta Canada, who offer a number of differet room types such as live hosted games and regular chatting for all ages. The network is strickly hosted and no abuse is tolerated so it's a great place for the younger ones to chat too. Some of the hosts are Austrailian based and all are helpful and friendly. If you've chatted before and wish to connect to chat right away ...Click Here...or if you are new, go to our introduction page and learn how to connect ...Click here...

EB Conference, South Australia - 25th May, 2003
Latest pictures Click Here
To sum it all up we had a wonderful time and met some pretty amazing people. The venue was excellent and everything was laid on.

The Nuskin corporate manager Nigel Sinclair was one of the guest speakers and he strongly supported a national body being formed as did most people. At the end of the 2 days there was an open forum meeting, the main subject was forming a national body, issues were discussed, etc.and then we had to leave to catch the plane.

Another guest speaker was Lynn Anderson (EB Medical Research Foundation) from the States. Both of her children died from RDEB in their teenage years and she now fundraises. She has raised over 4 millionm dollars, her main message was don't despair, they have 2 new processes to replace the effected genes in the skin for RDEB from the stem cells (grafting and by injection). Both have to be approved by the government so they can begin to experiment on humans instead of mice. This is a lengthy process......

Most of the other speakers were EB sufferers or their parents. We met Mindy from NZ who is the coordinator. She is applying for a 2 year visa extension to stay on, she has thoroughly enjoyed her 6 months so far. We met Humphrey and his mother. Wonderful people.........the list goes on.

Anna (from NZ) was telling us how they lobbied to the Government so EB sufferers can get all free dressings, etc. A family from Christchurch said that their dressings and care totals $100,000 / year. NZ are looking at holding kids camps because the kids benefit so much from it. (as in the States)

Nuskin have offered any help required so I think we should take advantage of that and learn from the different models that have been set up in the business world, etc. From all that I heard, the general feel is to keep the state groups due to different states regulatory compliance, health care settings, etc.

Nuskin stated that he saw the needs for a national body to
  • - register as a charitable organisation
  • - better bargaining power
  • - central source of education
  • - central source of funding and clout
  • - need national patron for Australia (the right person can bring a wealth of contacts, etc)
  • - national data base and website
  • - national newsletter / pamphlet
  • - create partners (in the business world)
  • - specialist funding resource
  • - provide additional carers / and funds for EB camp
  • - raising profile and educating public
  • - specialist care

Courtesy -Sue Holley, Secretary, Debra Queensland.

Nea Paynter
Nea Paynter - Wynnum, Queensland, Australia - 4th Mar, 2003
AFTER six months of hard training often in rough seas and high winds, Wynnum newsagent Nea Paynter is ready...

She did not compete in an elite sport or even for a prize - she paddled around St Helens Island and Green Island in a kayak, charity will be the big winner.

Nea used the 27km paddle to raise money for the Quota club of Wynnum Manly so it can provide much-needed assistaance to local charities.

Debra Australia Queensland extends appreciation for Nea and the 'Quota club Wynnum Manly' for their contributions towards the support of clinical, educational and family services. ( Report courtesy -Wynnum Herald )

PHP Update - June 2003

PHP Update

Our website hosts Diggy, supports PHP, a recursive acronym for PHP: Hypertext Preprocessor is widely-used Open Source general-purpose scripting language that is especially suited for Web development and can be embedded into HTML. Our website is undergoing a seamless transition, please report any bugs to the WebMaster.
Good Links - May 2003
When we first began, there were very few resources on the web for EB, since then, the amount of information available is astounding. We're hoping to capture as many as we can over the coming months to help our visitors keep up to date.

New Treasurer : Mrs Sue Dale
Welcome Sue!
Kelly is moving to San Diego, California, we will miss her greatly and wish her a "Bon Voyage".
Sue our new Treasurer has kindly taken on the role and we are happy to have her aboard.

Donation : Mr Andrew Dry - The Gap
AUD$100.00
Andrew's kind donation is very much appreaciated and we thank him for the support.

Roses : Raised AUD$200.00 plus
Kerry - Trusty fund raiser
Kerry has been busy selling Roses for Debra in the Wynnum and Manly areas, her efforts are always extraordinary and we thank her for the great support.

Butterfly Tatoo Day : Raised AUD$376.00
St Peter Chanel - Catholic primary School
Children were asked to donate a gold coin in exchange for a Butterfly tatoo, a great success! Even the year 7 boys joined in and supported the cause.

Kind thanks
  • Mr Neil Collins c/- St Peter Chanel.
  • All the students at St Peter Chanel.

Lucilla's Win a Chef Raffle : Raised AUD$1500.00
Winner : Trish of Red Hill
The 5 course dinner with wine for eight is to held on Tuesday 10th December. Trish is moving to Tasmania and this will be a great farewell dinner for her and her friends.

Photographs Coming Soon!
Kindly Sponsored by:
  • The Gap Family Markets
  • The Fridge - The Gap
  • Gap Printing
  • Lorenzo the Chef