http://www.debraqld.org
Welcome to the Queensland branch of the Dystrophic Epidermolysis Bullosa Research Association of Australia, Inc. This site is an on-line information source about Epidermolysis Bullosa (EB) intended to increase public awareness and provide updated information on EB.DEBRA-A Queensland was established in 1979. It is a voluntary organisation that provides a network of communications for patients and relatives to share experiences and to support one another.
The Queensland branch of DEBRA-A is pleased to be a resource of information about EB. However, the information provided here should never take the place of advice from your health care provider. Be sure to check with your health care provider about any changes in your treatment plan.
The Queensland branch of the Dystrophic Epidermolysis Bullosa Research Association of Australia (DEBRA-A) is a registered charity dedicated to providing support for people with Epidermolysis Bullosa (EB) and their families. DEBRA-A Queensland is also funding a molecular diagnostic service for the characterisation of mutations associated with EB. (Go to Research) DEBRA-A Queensland is managed by an executive committee elected by the membership for a period of one year. The executive committee is a voluntary body.
- President: Kathy Hagan
- Secretary: Sue Holley
- Treasurer: Paul Galvin
- General enquiry telephone: 07 46 937 003
Executive Members
The objectives of the organisation are:
- To raise funds and support molecular diagnostic services for the characterisation of mutations associated with EB.
- To support and assist sufferers in their daily lives.
- To provide counselling and support, especially to parents of a newborn child.
- To educate sufferers and to increase public awareness about EB.
- Disseminate timely and accurate information about EB to patients, family members and the health care community.
- To provide an informal link between parents and professionals.