EB Parents
Welcome to the EB Parents section of Debra Queensland. We have merged EB information from EB parents over to
this domain to give our audience more content and enrich the services of Debra Queensland.
EB parents is composed of biographies, images, and real accounts of day to day living with EB. As a parent or
someone with EB, EB Parents reflects the information we've gathered over the years and from around the world
that has been useful to many. EB Parents does not reflect the role of the Debra Queensland organisation.
We trust you find the information useful and if you have any tips, or biographies you would like posted here, please
send us an e-mail.
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DebRA Australia
NEW - National website.
Click to visit DebRA Australia
Nationally Incorporated
As of 2 February, 2005, we have been granted certification under the South Australian
Associations Incorporation Act, 1985.
Epidermolysis Bullosa is rare skin disorder and Australia is geographicly large,
for many years individuals and small state groups have been the primary source of
services and have supported the EB skin disorder. A collaborative effort has
been made by the states and we have officially founded DebRA Australia.
In brief DebRA is:
- Funded solely by voluntary donations.
- Investigating and implementing ways to help sufferers in their daily lives.
- Educating the general public and health care professionals about EB
- Raising money for vital research into EB
What's new?
Goodlinks
Note: Links will launch a new instance of a browser window.
2005 - Greeting cards
>> Click here << to place your order.
Dystrophic Epidermolysis Bullosa Research Association of Australia - Qld (DEBRA-A QLD) is a non-profit organisation supporting members
with a rare genetic skin condition. 100% of profits made from the greeting cards will assist members with E B.
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